Even though I desperately wanted to get to the hospital to get things going earlier in the week, there was always that feeling that I wanted to be at this point - coming home. Yesterday Quinn was able to come home. If she really knew and understood about Dorothy in the Wizard of Oz, she might have clicked her sure steps together and said, "There is no place like home." It is hard to explain why I know this, but as I walked her through the door, I could just tell she was relieved to be home. Poor girl who has been through so much is finally in the place of love and acceptance for her - in her home with her hair clippies and bows, clothes, toys, photos, and love surrounding every cute inch of her.
Last night my neck and shoulders were as hard a rock from the accumulation of the stress, anger, and transitions of the week. I was able to go to bed and feel that tension lift. Today feels so much better. I actually get to have a day to spend with my family - so so awesome!!!! There is truly no place like home, especially a home with all your family there together.
I have said it before and I know I will say it again, but I have learned so much because of Quinn. I really do feel that this girl came into my life to shake me up, push me off of my equilibrium, and teach me about worlds I never knew about - Down syndrome and now Infantile Spasms. She has taught me that there is so much that people just take for granted. She has taught me the real feeling of having unconditional love for your child. She has taught me that difficult times can make you a better person. I love you Quinny and I am so happy that you are home. There is no place like our home with you in it.
These clips are of two beautiful teenagers with DS - one becoming a homecoming queen and the other a king. Happy tears!
19 hours ago