Not much profound to say today. I am just more random than anything. I am very tired from this emotional roller coaster that got me absolutely nowhere - the one that I must start again next week. I get to go back to work today and probably get 50 million questions about where I was. I also had the joy of checking my voicemail and hearing a forwarded message from ANOTHER HELPING PROFESSIONAL where they used the r-word. That was nice (sarcastically said). There is always something. It gets draining sometimes because you feel like you are walking in place and getting nowhere.
Lately I feel like a ping pong - being bounced around - back and forth between highs and lows of this journey. Ok high - at least we found out what Quinn's dx is (IS), learn they think she has a good prognosis because of the late onset, DS, lack of regression of skills, and lack of clustering. Then low - sent away with no tx, please tell us if you notice any regression now (what, do you expect it in the next five days?), come back later "hopefully" we can do it again (hopefully?). I know they had to do what they had to do, but I was psychologically ready then and now I have to start over the process. Is this a sign of something? Or is it just the way it is?
Random thought - why is it that DS puts you at risk for things (like cancer, IS) and then actually helps your prognosis and how you respond to tx? This is puzzling. The extra chromosome hurts you and then helps you - like a ping pong - which direction is it? Hit one direction and then the other. You become sad about the DS, upset at the DS that it put your child at risk for these things, but then relieved about the DS because it helps you in so many ways. I can't figure it out. It isn't for figuring out I guess.
Since I didn't post a clip yesterday, I posted two today. The first is about the r-word and the second is a clip about a book I intend to read and has been sitting on my shelf forever - maybe Christmas break is the time to read it.
19 hours ago