We went to my parents this afternoon for that side of the family's Christmas celebration. Then after a long drive back we went to church and opened up gifts here at home. We have to go to Neal's parents tomorrow (another long drive), so it was so nice have a quiet night home after church. Everyone put on their new PJs and we just all relaxed. Something I needed. Something we all needed. Quinny crawled around and played as we opened gifts. It was just so nice. What a Christmas blessing that is.
The sermon tonight was about Jesus' birth (of course). Our minister talked about how so much joy came out of such a terrifying time. The terrifying part was King Herod's threat to kill off all the newborn babies. I started to think about this journey that we are on. First we were terrified about the diagnosis of Down syndrome. But out of that came the great joy of Quinn. Had I known then what I know now, I wouldn't have been so afraid - but what can you do about that. Then came the terrifying journey of Infantile Spasms. But now we have the joy of seeing Quinny crawl and do new things every day. Since the treatment, something is now different with her, she is so much more active and purposeful in what she is trying to do. It is a joy to see.
Had it not been for these two things (DS and IS), I would have really not have understood the sermon tonight. So I do appreciate the better understanding I have, but for the record - I still hate IS. DS isn't that big of a deal to me and has actually become my friend.
-Karyn
Breaking Point
1 year ago
This is Joyce. So happy to read that the IS seems to be under control. I can only imagine how scary that must be. I so understand your message today. I often say once you have all the pieces to the puzzle how much clearer the picture is. I wonder sometimes about all those who don't have the real life experience, what message are they hearing? Merry Christmas to you and your family.
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