I heard about your blog from Kris Delaney. As I read, I could relate to so much of what you are saying already. My five month old son with DS was just diagnosed with IS a eight days ago. He had his seventh dose of ACTH tonight. It's so hard to give, but I hope that it works. The smiles that we are seeing once in a while right now are so wonderful, but I can't wait for them to come back as they once were- frequent and infectious!
This blog is about our journey raising three bright, gorgeous kids (Riley, Aidan, and Quinn). Miss Quinny happens to have an extra 21st chromosome (Down syndrome) along with Infantile Spasms (West syndrome) and Stereotypic Movement Disorder. This blog is for awareness and advocacy for families with children with special needs.
I am loving mom of three children, two boys and one girl. Riley is age twelve; Aidan is eight; and Quinn is five. I have been married to my husband, Neal, for 14 years.
Down Syndrome Awareness Month Blogging Challenge - I DID IT 2009
Deep Thought by Jack Handy
“If you define cowardice as running away at the first sign of danger, screaming and tripping and begging for mercy, then yes, Mr. Brave man, I guess I'm a coward.”
How wonderful! Merry Christmas!
ReplyDeleteHi Karyn,
ReplyDeleteI heard about your blog from Kris Delaney. As I read, I could relate to so much of what you are saying already. My five month old son with DS was just diagnosed with IS a eight days ago. He had his seventh dose of ACTH tonight. It's so hard to give, but I hope that it works. The smiles that we are seeing once in a while right now are so wonderful, but I can't wait for them to come back as they once were- frequent and infectious!
I'll pray that little Quinn remains seizure free!
Jill
djy@yankehome.com