First, can I just say that isn't this girl the cutest?
I could look at her all day.
Here we are with things - at least the diagnoses: 1. Down syndrome - no biggie. 2. Infantile Spasms - sucky. But the good news is that there hasn't been any more seizures and her med is supposed to help prevent them now. 3. Stereotypic Movement Disorder - the jury is out on how I feel about this one, but it is very stressful to see these when you fear seizures all the time. 4. Now the neuro wants an eval by a neuropsychologist. Why you ask? Well I don't know - I wasn't at the appointment and did not have the opportunity to ask, but I have my suspicions of what he may be thinking is there PDD (Pervasive Developmental Disorder). I am basing this on the questions he asked Neal. I just don't know about whether that is something with her though. The last few days she has been so interactive. The more I watch her, the less I am convinced.
But today all of the above doesn't matter because just consider how cute cute cute my girl is. She is the best daughter a mom could have and I am blessed. Oh the power of mighty Quinn.
This blog is about our journey raising three bright, gorgeous kids (Riley, Aidan, and Quinn). Miss Quinny happens to have an extra 21st chromosome (Down syndrome) along with Infantile Spasms (West syndrome) and Stereotypic Movement Disorder. This blog is for awareness and advocacy for families with children with special needs.