tag:blogger.com,1999:blog-8024698904828295931.post2155870596253557190..comments2023-09-27T05:40:51.544-05:00Comments on QUINN'S CRUSADERS: HelplessKarynhttp://www.blogger.com/profile/15059392602990523961noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-8024698904828295931.post-3819739181537309192010-05-15T13:17:58.181-05:002010-05-15T13:17:58.181-05:00Sorry Karyn. I hate this for you, and Quinn, and ...Sorry Karyn. I hate this for you, and Quinn, and your family. I wish I could take you out for coffee, or whatever. Hugs to you & Quinn.Juliehttps://www.blogger.com/profile/12282587109702216257noreply@blogger.comtag:blogger.com,1999:blog-8024698904828295931.post-59276577046113316332010-05-15T12:25:22.231-05:002010-05-15T12:25:22.231-05:00Karyn, I am so sorry to hear of Quinn's new se...Karyn, I am so sorry to hear of Quinn's new seizures. I do know how heartbreaking it is to have IS in the rearview mirror and have something else take its place. I just breaks my heart when Katelyn seizes and I can do NOTHING but watch her get through it. Of course they always up the meds but sometimes I feel like it's just a bandaid covering it and they will always come back. Some even go as far to ask "Is she cured?" and I just tell them "No, probably never will be." as hard as it can be to say that sometimes. Keep your head up Karyn, we have to remain to fight for these girls and there are so many rewards involved when they do make developmental gains or even something as small a great smile from them.MSKMOMhttps://www.blogger.com/profile/07558634904416691268noreply@blogger.comtag:blogger.com,1999:blog-8024698904828295931.post-68910134960784815332010-05-15T08:07:17.755-05:002010-05-15T08:07:17.755-05:00Hello,
New to your blog. My son is 3, has DS and ...Hello,<br />New to your blog. My son is 3, has DS and a complex heart defect, we are post 3 heart surgeries. He sees his cardio every 4 months, we are thankful beyond words that he is doing so well and give God the glory and have faith that Will has a wonderful future. But we also know, the road has many twists and turns, and we never know what is around the corner, with his patched up heart.<br />your post hit home to me, as I too, just want to be a mom of a wonderful child, who happens to have DS. I love his extra chromosome, never want that to change, but If I could give him a PERFECT heart...in a instant. For quite a long time, I was very jealous of parents of healthy kids with DS, and angry when I heard them complain about typical DS issues. I just want my child to live, I dont care what his IQ is, or how his IEP goes, or that it is so hard to find shoes that fit...<br />So I here you, I know the hurt when people say something with good intention, but it actually makes it worse. (the worst...God only gives you what you can handle. That is so wrong...God did not give this to us, but He is helping us through...my take on that)<br />So let me just say, Quinn is gorgeous, it totally sucks that she has epilesy, it doesnt seem fair. I will be praying for your precious treasure.<br />Kim, mom to Will carepage HeWill<br />kknipp@kc.rr.comKim Knoreply@blogger.com