tag:blogger.com,1999:blog-8024698904828295931.post1742893034687335340..comments2023-09-27T05:40:51.544-05:00Comments on QUINN'S CRUSADERS: How Do We Value Life?Karynhttp://www.blogger.com/profile/15059392602990523961noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-8024698904828295931.post-56898365962431038692009-11-19T09:12:06.597-06:002009-11-19T09:12:06.597-06:00Karyn, I hate that you and Quinn have to go throug...Karyn, I hate that you and Quinn have to go through this. My heart breaks for you. Please know that I am thinking of and praying for you daily. BIG HUGS to both of you.Terrihttp://hust-family.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-8024698904828295931.post-39941537208657301402009-11-17T06:52:29.106-06:002009-11-17T06:52:29.106-06:00It OK to be jealous of those kids who are only dea...It OK to be jealous of those kids who are only dealing with Down syndrome. I know, they seem light years ahead of your kid. I haven't read the Brags section on Downsyn for years. But our kids will do what they are able to do in their own time. Big hugs.datrihttps://www.blogger.com/profile/11780816487520416497noreply@blogger.comtag:blogger.com,1999:blog-8024698904828295931.post-77103737469655680552009-11-17T00:05:57.424-06:002009-11-17T00:05:57.424-06:00Karyn,
She will get through this and you will hav...Karyn,<br /><br />She will get through this and you will have your sweet girl back! I know what you are going through and I am sooo sorry that you have to have this experience too. It is horrible and sucks but there is light at the end of the tunnel. Keep focused on the goal of getting your Quinn healthy again and take it one minute at a time.<br /><br />Big Hugs,<br />Cara & LindsayAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8024698904828295931.post-13482054419407660502009-11-16T13:56:03.215-06:002009-11-16T13:56:03.215-06:00I wish I had some magic words of wisdom and comfor...I wish I had some magic words of wisdom and comfort to help you as you travel this difficult path. You guys are in my thoughts often. I hope you both feel better really, really soon! ~CourtneyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8024698904828295931.post-34830422760635808032009-11-16T10:13:24.300-06:002009-11-16T10:13:24.300-06:00So sorry you are going through this. I say a pray...So sorry you are going through this. I say a prayer that the ATCH will work. I really hope it works well. I hated Abigail IS worse then when she had her heart surgery. They were scary then that. Quinn will pull through. Once Abigail was off the ATCH she was a changed baby. Sending you hugs and good thoughts. CarolAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8024698904828295931.post-45712415433533710622009-11-15T23:58:06.698-06:002009-11-15T23:58:06.698-06:00I know what it is like to be in the midst of ACTH....I know what it is like to be in the midst of ACTH. The word "horrible" just doesn't desribe it. Sophie went through 2 rounds of ACTH. Neither round worked.<br /><br />Has anyone suggested vitamin B6? Neuros mostly suggest it with the use of Keppra (anti-epileptic drug) to help with the mood swings caused by Keppra. But we used it for Sophie while she was on ACTH. It seemed to help.Sophie's Story by Elainehttps://www.blogger.com/profile/00415731740298071423noreply@blogger.comtag:blogger.com,1999:blog-8024698904828295931.post-32166585399611253462009-11-15T18:32:25.534-06:002009-11-15T18:32:25.534-06:00I'm sorry your heart is hurting. I'm wait...I'm sorry your heart is hurting. I'm waiting for the day things are better. I love Quinn, she's in my thoughts and prayers constantly, and I hate IS too.Juliehttps://www.blogger.com/profile/12282587109702216257noreply@blogger.comtag:blogger.com,1999:blog-8024698904828295931.post-51015794513722136482009-11-15T16:52:23.117-06:002009-11-15T16:52:23.117-06:00No words of wisdom here. Can't say that I'...No words of wisdom here. Can't say that I've been there, done that. Just know I'm thinking of you and sweet Quinn and I hate IS too. <br />---JenJRShttps://www.blogger.com/profile/05295890734305677152noreply@blogger.com