What would the world be like if more people in power knew of what it was like to have a child with special needs? I am assuming our governor has two typical sons, and maybe I am wrong....but I doubt he would leave the door open in his budget repair bill to have the benefits for individuals with disabilities be able to be cut for years down the road if he knew what it was like to have a child with a disability. I read his bio online just a moment ago and nothing struck to say that he knew what it was like to have to fight for his child to get services, equal treatment, stop having seizures, be accepted in this world, all the things that one might have to do. I don't even care about the union stuff as much as I care about this issue - this impacts my daughter and how I see our society as valuing her. And this to top it all off, this topic isn't even talked about very much in the media. Talking about disabilities doesn't seem to be sexy enough for the media. Long story short, I will do what it takes to give my baby girl what she needs. Now is not the time to be a state employee, so I am leaving state service. Call that a contribution to the budget repair bill. One less person for our governor to lay off.
This blog is about our journey raising three bright, gorgeous kids (Riley, Aidan, and Quinn). Miss Quinny happens to have an extra 21st chromosome (Down syndrome) along with Infantile Spasms (West syndrome) and Stereotypic Movement Disorder. This blog is for awareness and advocacy for families with children with special needs.